You have the power to advance ALS research.

You have the power to advance ALS research.

Join the ALS Research Collaborative

You are invited to take part in the ALS Research Collaborative (ARC) - a research study for ALS, also known as Lou Gehrig's Disease, sponsored and managed by the ALS Therapy Development Institute (ALS TDI).
The ALS Research Collaborative (ARC) is the most comprehensive and longest running translational research study in ALS. Through this collaborative study, ALS TDI partners with people living with ALS all over the world to gather data about the progression of ALS and advance our ALS drug discovery efforts. Participants share data on their movement, lifestyle, medical history, genetics, biomarkers, voice recordings and patient cell biology to inform ALS research.
Watch the video below to learn more!

What to Know Before Enrolling

  • The ARC is a natural history study. You will not receive any treatment or medical advice from ALS TDI
  • All data submission is optional and can be completed from home
  • Participants can choose what data they submit and how often they submit it
  • All personal information and data will be kept secure
  • ALS TDI does not disclose the identity of our ARC participants, and all shared data is de-identified

Ready to Enroll?

The first step to becoming a ARC participant is setting up an account:
  • Create an account and answer a few quick questions to confirm that you are eligible for the program
  • Once your account is created you will receive an email asking you to verify your account
  • After you verify your account, you can login and begin the enrollment process
  • Throughout the enrollment process we will provide more information about program participation and options
You may pause or stop the enrollment process at any time

Create an account to get started

After you submit an email address and a password we will e-mail a verification link that will expire in 24 hours.

If you already have an account,
please click "Sign In" below.
Sign In
To join the ALS Research Collaborative, you need to meet a few requirements
Please answer the following questions.
Do you have a question about these requirements? Email for help.
*Diagnoses include Definite, Probable, Lab-Supported Probable, Possible, or other MND (e.g., PLS)
**It is important to be able to understand the consent form completely to obtain proper consent.
We're sorry! You do not meet the requirements
Your account cannot be created because you do not meet the requirements for joining the PMP.
Your account has been created!
You will receive a verification email with a link you must click to move forward with the registration process. If you do not receive your verification email click the link below to send a new verification email. If the problem persists please contact us at