You have the power to advance ALS research.
You have the power to advance ALS research.
Join the ALS Research Collaborative
You are invited to take part in the ALS Research Collaborative (ARC) - a research study for ALS, also known as Lou Gehrig's Disease, sponsored and managed by the ALS Therapy Development Institute (ALS TDI).
The ALS Research Collaborative (ARC) is the most comprehensive and longest running translational research study in ALS. Through this collaborative study, ALS TDI partners with people living with ALS all over the world to gather data about the progression of ALS and advance our ALS drug discovery efforts. Participants share data on their movement, lifestyle, medical history, genetics, biomarkers, voice recordings and patient cell biology to inform ALS research.
Watch the video below to learn more!
What to Know Before Enrolling
The ARC is a natural history study. You will not receive any treatment or medical advice from ALS TDI
All data submission is optional and can be completed from home
Participants can choose what data they submit and how often they submit it
All personal information and data will be kept secure
ALS TDI does not disclose the identity of our ARC participants, and all shared data is de-identified
Ready to Enroll?
The first step to becoming a ARC participant is setting up an account:
Create an account and answer a few quick questions to confirm that you are eligible for the program
Once your account is created you will receive an email asking you to verify your account
After you verify your account, you can login and begin the enrollment process
Throughout the enrollment process we will provide more information about program participation and options
You may pause or stop the enrollment process at any time
Create an account to get started
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Email Address
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Sign Up
After you submit an email address and a password we will e-mail a verification link that will expire in 24 hours.
If you already have an account,
please click "Sign In" below.
Sign In
To join the ALS Research Collaborative, you need to meet a few requirements
Please answer the following questions.
Are you 18 years of age or older?
Yes
No
Have you had a diagnosis* of ALS/MND OR are you a known carrier of an ALS-associated mutation?
Yes
No
Can you communicate in written English?**
Yes
No
Do you have a question about these requirements? Email
archelp@als.net
for help.
Submit Your Answers
*Diagnoses include Definite, Probable, Lab-Supported Probable, Possible, or other MND (e.g., PLS)
**It is important to be able to understand the consent form completely to obtain proper consent.
We're sorry! You do not meet the requirements
Your account cannot be created because you do not meet the requirements for joining the PMP.
Support ALS Research
Your account has been created!
You will receive a verification email with a link you must click to move forward with the registration process. If you do not receive your verification email click the link below to send a new verification email. If the problem persists please contact us at
archelp@als.net
Resend Verification